Verify a Trial & Check Your Eligibility

[Genetic Counselor]

How to Verify a Trial & Check Your Eligibility (Read Before Posting)

[Genetic Counselor]

A short guidance post to keep this board reliable.

1. Always check CTRI (ctri.nic.in) for the registration number before treating any trial as legitimate – search by disease name or sponsor.
2. Genetic report first – most exon-skipping trials require your child’s exact deletion/mutation confirmed by NGS or MLPA testing before you can even ask about eligibility.
3. Contact the trial site directly – use the investigator/sponsor contact info posted in the trial threads, not third-party agents.
4. Be wary of unregistered “treatments” – if a clinic offers a DMD gene therapy or stem-cell treatment with no CTRI number, treat it as unverified and ask fellow members before proceeding.

If there’s any additional queries, please post them in the forum

[Author]

Posts